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International Journal of Health Policy and Management
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Kohler, G., Sampalli, T., Ryer, A., Porter, J., Wood, L., Bedford, L., Higgins-Bowser, I., Edwards, L., Christian, E., Dunn, S., Gibson, R., Ryan Carson, S., Vallis, M., Zed, J., Tugwell, B., Van Zoost, C., Canfield, C., Rivoire, E. (2017). Bringing Value-Based Perspectives to Care: Including Patient and Family Members in Decision-Making Processes. International Journal of Health Policy and Management, 6(11), 661-668. doi: 10.15171/ijhpm.2017.27
Graeme Kohler; Tara Sampalli; Ashley Ryer; Judy Porter; Les Wood; Lisa Bedford; Irene Higgins-Bowser; Lynn Edwards; Erin Christian; Susan Dunn; Rick Gibson; Shannon Ryan Carson; Michael Vallis; Joanna Zed; Barna Tugwell; Colin Van Zoost; Carolyn Canfield; Eleanor Rivoire. "Bringing Value-Based Perspectives to Care: Including Patient and Family Members in Decision-Making Processes". International Journal of Health Policy and Management, 6, 11, 2017, 661-668. doi: 10.15171/ijhpm.2017.27
Kohler, G., Sampalli, T., Ryer, A., Porter, J., Wood, L., Bedford, L., Higgins-Bowser, I., Edwards, L., Christian, E., Dunn, S., Gibson, R., Ryan Carson, S., Vallis, M., Zed, J., Tugwell, B., Van Zoost, C., Canfield, C., Rivoire, E. (2017). 'Bringing Value-Based Perspectives to Care: Including Patient and Family Members in Decision-Making Processes', International Journal of Health Policy and Management, 6(11), pp. 661-668. doi: 10.15171/ijhpm.2017.27
Kohler, G., Sampalli, T., Ryer, A., Porter, J., Wood, L., Bedford, L., Higgins-Bowser, I., Edwards, L., Christian, E., Dunn, S., Gibson, R., Ryan Carson, S., Vallis, M., Zed, J., Tugwell, B., Van Zoost, C., Canfield, C., Rivoire, E. Bringing Value-Based Perspectives to Care: Including Patient and Family Members in Decision-Making Processes. International Journal of Health Policy and Management, 2017; 6(11): 661-668. doi: 10.15171/ijhpm.2017.27

Bringing Value-Based Perspectives to Care: Including Patient and Family Members in Decision-Making Processes

Article 5, Volume 6, Issue 11, November 2017, Page 661-668  XML PDF (598 K)
Document Type: Original Article
DOI: 10.15171/ijhpm.2017.27
Authors
Graeme Kohler1; Tara Sampalli 1; Ashley Ryer1; Judy Porter2; Les Wood2; Lisa Bedford2; Irene Higgins-Bowser2; Lynn Edwards1; Erin Christian1; Susan Dunn3; Rick Gibson1; Shannon Ryan Carson1; Michael Vallis4; Joanna Zed5; Barna Tugwell6; Colin Van Zoost7; Carolyn Canfield8; Eleanor Rivoire8
1Primary Health Care, Nova Scotia Health Authority, Halifax, NS, Canada
2Diabetes Management Centre, Primary Health Care, Nova Scotia Health Authority, Halifax, NS, Canada
3Public Engagement, Nova Scotia Health Authority, Halifax, NS, Canada
4Behaviour Change Institute, Primary Health Care, Nova Scotia Health Authority, Halifax, NS, Canada
5Dalhousie Family Medicine, Halifax, NS, Canada
6Endocrinology, Nova Scotia Health Authority, Halifax, NS, Canada
7General Internal Medicine, Nova Scotia Health Authority, Halifax, NS, Canada
8Canadian Foundation Healthcare Improvement, Ottawa, ON, Canada
Abstract
Background
Recent evidence shows that patient engagement is an important strategy in achieving a high performing healthcare system. While there is considerable evidence of implementation initiatives in direct care context, there is limited investigation of implementation initiatives in decision-making context as it relates to program planning, service delivery and developing policies. Research has also shown a gap in consistent application of system-level strategies that can effectively translate organizational policies around patient and family engagement into practice.
 
Methods
The broad objective of this initiative was to develop a system-level implementation strategy to include patient and family advisors (PFAs) at decision-making points in primary healthcare (PHC) based on wellestablished evidence and literature. In this opportunity sponsored by the Canadian Foundation for Healthcare Improvement (CFHI) a co-design methodology, also well-established was applied in identifying and developing a suitable implementation strategy to engage PFAs as members of quality teams in PHC. Diabetes management centres (DMCs) was selected as the pilot site to develop the strategy. Key steps in the process included review of evidence, review of the current state in PHC through engagement of key stakeholders and a co-design approach.
 
Results
The project team included a diverse representation of members from the PHC system including patient advisors, DMC team members, system leads, providers, Public Engagement team members and CFHI improvement coaches. Key outcomes of this 18-month long initiative included development of a working definition of patient and family engagement, development of a Patient and Family Engagement Resource Guide and evaluation of the resource guide.
 
Conclusion
This novel initiative provided us an opportunity to develop a supportive system-wide implementation plan and a strategy to include PFAs in decision-making processes in PHC. The well-established co-design methodology further allowed us to include value-based (customer driven quality and experience of care) perspectives of several important stakeholders including patient advisors. The next step will be to implement the strategy within DMCs, spread the strategy PHC, both locally and provincially with a focus on sustainability.
Keywords
Patient and Family Engagement; Decision-Making; Quality Teams; Patient Experience
Main Subjects
Healthcare Quality
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