International Journal of Health Policy and Management

International Journal of Health Policy and Management

Grappling With the Inclusion of Patients and the Public in Consensus Building: A Commentary on Inclusion, Safety, and Accessibility; Comment on “Evaluating Public Participation in a Deliberative Dialogue: A Single Case Study”

Document Type : Commentary

Authors
Davina Banner 1
Katrina Plamondon 2
Nelly D. Oelke 1
1 School of Nursing, University of Northern British Columbia, Vancouver, BC, Canada
2 School of Nursing, University of British Columbia, Vancouver, BC, Canada
10.34172/ijhpm.2024.7715
Abstract
Deliberative dialogue (DD) may be relatively new in health research but has a rich history in fostering public engagement in political issues. Dialogic approaches are future-facing, comprising structured discussions and consensus building activities geared to the collective identification of actionable and contextualized solutions. Relying heavily on a need for co-production and shared leadership, these approaches seek to garner meaningful collaborations between researchers and knowledge users, such as healthcare providers, decision-makers, patients, and the public. In this commentary, we explore some of the challenges, successes, and opportunities arising from public engagement in DD, drawing also upon insights gleaned from our own research, along with the case study presented by Scurr and colleagues. Specifically, we seek to expand discussions related to inclusion, power, and accessibility in DD, highlight the need for scholarship that addresses the epistemic, methodological, and practical aspects of patient and public engagement within dialogic methods, and identify promising practices.
Keywords
Deliberative Dialogue
Consensus Methods
Patient-Oriented Research
Inclusion
Equity 
  1. Gagliardi AR, Dobrow MJ. Identifying the conditions needed for integrated knowledge translation (IKT) in health care organizations: qualitative interviews with researchers and research users. BMC Health Serv Res. 2016;16:256. doi:1186/s12913-016-1533-0
  2. Lavis JN, Boyko JA, Oxman AD, Lewin S, Fretheim A. SUPPORT tools for evidence-informed health Policymaking (STP) 14: organising and using policy dialogues to support evidence-informed policymaking. Health Res Policy Syst. 2009;7(Suppl 1):S14. doi:1186/1478-4505-7-s1-s14
  3. Burgess MM. From 'trust us' to participatory governance: deliberative publics and science policy. Public Underst Sci. 2014;23(1):48-52. doi:1177/0963662512472160
  4. Boyko JA, Lavis JN, Dobbins M. Deliberative dialogues as a strategy for system-level knowledge translation and exchange. Healthc Policy. 2014;9(4):122-131.
  5. Lomas J. The consensus process and evidence dissemination. CMAJ. 1986;134(12):1340-1341.
  6. Morain SR, Whicher DM, Kass NE, Faden RR. Deliberative engagement methods for patient-centered outcomes research. Patient. 2017;10(5):545-552. doi:1007/s40271-017-0238-8
  7. Scurr T, Ganann R, Sibbald SL, Valaitis R, Kothari A. Evaluating public participation in a deliberative dialogue: a single case study. Int J Health Policy Manag. 2022;11(11):2638-2650. doi:34172/ijhpm.2022.6588
  8. Banner D, Bains M, Carroll S, et al. Patient and public engagement in integrated knowledge translation research: are we there yet? Res Involv Engagem. 2019;5:8. doi:1186/s40900-019-0139-1
  9. Pauly B, Revai T, Marcellus L, Martin W, Easton K, MacDonald M. "The health equity curse": ethical tensions in promoting health equity. BMC Public Health. 2021;21(1):1567. doi:1186/s12889-021-11594-y
  10. Rycroft-Malone J, Wilkinson J, Burton CR, et al. Collaborative action around implementation in Collaborations for Leadership in Applied Health Research and Care: towards a programme theory. J Health Serv Res Policy. 2013;18(3 Suppl):13-26. doi:1177/1355819613498859
  11. Langley J, Wolstenholme D, Cooke J. 'Collective making' as knowledge mobilisation: the contribution of participatory design in the co-creation of knowledge in healthcare. BMC Health Serv Res. 2018;18(1):585. doi:1186/s12913-018-3397-y
  12. Plamondon K, Banner D, Cary MA, et al. Relational practices for meaningful inclusion in health research: Results of a deliberative dialogue study. Health Expect. 2023;27(1):e13865. doi:1111/hex.13865
  13. Chambers D, Wilson PM, Thompson CA, Hanbury A, Farley K, Light K. Maximizing the impact of systematic reviews in health care decision making: a systematic scoping review of knowledge-translation resources. Milbank Q. 2011;89(1):131-156. doi:1111/j.1468-0009.2011.00622.x
  14. Bohm D, Senge P, Nichol L. On Dialogue. Routledge; 2004.
  15. Doane GH, Varcoe C. Relational practice and nursing obligations. ANS Adv Nurs Sci. 2007;30(3):192-205. doi:1097/01.ANS.0000286619.31398.fc
International Journal of Health Policy and Management
Volume 13, Issue 1
2024
Pages 1-4

  • Received Date 30 September 2022
  • Revised Date 10 March 2024
  • Accepted Date 12 March 2024
  • First Published Date 13 March 2024
  • Published Date 01 December 2024